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项目名称:方舟之家 Ark Caring Home
目前状态:募捐中
截止时间:2019-04-01 至 2021-05-01
目前已募:2767.7元
募款人数11人
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背景需要:

在大城市医院附近,有一群需要关注的爸爸妈妈,她们的孩子罹患恶性肿瘤,即常人闻之色变的癌症。远途来异地治疗的她们,不得不借住在医疗资源集中的上海等城市。孩童治疗期间,家人们除了长久承受精神压力,还要面对高价租房、失学失伴失业、家庭关系、长期放化疗康复、医疗咨询求助等困境需要。


Background Info.:

In the vicinity of downtown hospitals, there is a group of parents in need of special care. Their children suffer from malignant tumor, also known to people as fearsome cancer. They have to travel a long way to Shanghai or other big cities with better medical resources for treatment. During the period, families have to endure persistent mental stress and confront difficulties including high rents, children’s dropping out of school and losing companion, parents’ losing jobs, tense family relationships, long-term radiotherapy and chemotherapy as well as seeking medical consultation and help.



许多爸爸妈妈日夜“借宿”在医院楼道、大厅座椅。而租赁房屋设施、卫生环境堪忧,不利肿瘤治疗与康复。


Many parents have to stay overnight in hospital corridors or sleep on hospital lobby seats, for the sanitation conditions of the apartments they might afford are worrying and not good for the treatment and recovery of tumor.


有关数据显示,威胁我国儿童生命的第二大病因是恶性肿瘤(第一是意外伤害),每年新增约四万病例。儿童恶性肿瘤包含白血病、淋巴瘤和实体瘤,五年生存率为72%左右,其治疗时间长(平均一至三年或更长)、花费大(一般十万元以上),少部分家庭也不得不面对失亲、失独的痛楚。


According to related data references, the second fatal threat to children’s lives in China is malignant tumor (the first threat is accidental injury), with about 40,000 new cases increased per year. Children’s malignant tumor includes Leukemia, lymphadenoma and solid tumor. Although their five-year survival rate reaches around 72%, the treatment period is long (on average 1 year to 3 years or even longer) and the medical expenses are high (normally over RMB100,000). Some families have to face the sorrow of losing beloved ones or their only child.


为关爱癌症儿童、病友家庭,一群城市志愿者积极行动起来,搭建充满盼望与爱的“方舟之家” (简称小家),定位为专门提供住宿与关怀的公益慈善服务。年内计划华东区上海市开设三家共13个房间床位,西南区泸州市开设50张床位的公益关怀中心。同时提供配套的关怀活动,如“乌鸦叼饼”、“病童学堂”、“小家心愿墙”、“家长会课堂”、“方舟打零工”、“方舟爱心房东”等,努力让病友家庭在求医康复之路上充满更多正能量!


For caring cancer children and their families, a group of volunteers are in action to build up “Ark Caring Home” (Little Home for short) with hope and love. The Little Home provides accommodation and caring service. Our plan is to open 3 homes with 13 rooms in Shanghai, East China and a caring center with 50 beds in Luzhou City, Southwest China. Meanwhile, caring activities such as "Ravens’ Breads", "Sick children Classes”, “Little Home Dreams’ Wall”, "Parents’ Classroom", "Ark Part-time Jobs" and "Ark Loving Landlord" are carried out to invigorate the families in hardship.



真实案例:

1.涵涵一家的担忧。涵涵今年六岁,她患了髓母细胞瘤脑瘤,但只能由爷爷奶奶带着来上海求医。因为爸爸妈妈还在安徽老家,他们要忙着生妈妈肚子里的小弟弟。一家人祖辈务农,高昂的治疗费用仅靠亲戚朋友借贷支撑。孩子手术后需长期放疗、化疗,不得不租住在医院附近,一个月仅房费便需三四千元。后来经志愿者介绍,申请入住了“方舟之家”。小家宽敞舒适、卫生整洁的住宿环境,让涵涵的爷爷奶奶非常感谢,常感叹说:自家还从来没住过这么漂亮的房子呢!健康的环境为孩子进一步治疗康复打下了基础。许多社会爱心人士,了解她们一家的难处后,纷纷送来大米、食用油、洗衣液、消毒液等生活用品,这些实际帮助如雪中送炭般消除了一家人的担忧。此刻,住在小家里的涵涵知道,自己不是孤身一人与病魔抗争。


Actual Cases

1. Worry of Hanhan & her family. Hanhan, with Medulloblastoma, a brain tumor, is only 6 years old. Since her parents have just given birth to a baby boy in their hometown in Anhui province, her grandparents have to take her to Shanghai for treatment. They are farmers and the high medical expenses are borrowed from relatives and friends. After surgery, Hanhan needs radiotherapy and chemotherapy. Therefore, the family has to rent an apartment close to the hospital with housing cost reaching RMB3,000 to RMB4,000 per month. After introduction from a volunteer, Hanhan’s family applied to stay in “Ark Caring Home”. The little home is spacious, comfortable, sanitary and tidy. Grandpa and Grandma are grateful as the living condition is even better than their own home. The good accommodation conditions benefit the children’s further treatment and recovery. Many people with love still send them daily necessities such as rice, cooking oil, washing liquid and detergent, which largely relieves their worry. At this moment, Hanhan knows she is not alone when fighting with cancer. 


涵涵放疗后在小家休息

Hanhan resting in little home after radiotherapy


2.小馨妈妈的愁苦。小学四年级,正是在操场上嬉笑玩闹、徜徉知识海洋,并与父母撒娇的年纪。可惜这些同龄人理所当然的日常,如今却成了小馨的奢侈品。她爱唱歌朗诵,爱玩也爱学习,人生的小舟仿佛正要扬帆起航,却在今年三月不幸查出患有脑干胶质瘤。医生做完各项检查后,不得不告知父母无法手术,只能长期放化疗治疗。病在儿身,痛在母心。小馨小小的身体一次次承受着治疗的痛苦,而她的妈妈也经历着精神上一次次的折磨、重创。申请住进“方舟之家”后,许多上海的爱心妈妈,在参与小家“病童学堂“、“家长会“等活动时,看到愁苦的可怜母亲,便隔三差五的来看望,一起谈心、安慰。人生本多苦,盼望是新路。“方舟之家”仿佛一方避风港湾,为患难家庭提供了一个栖身、休整的地方。来,一起加油!


2. Distress of Xiao Xin’s Mother. Fourth grade pupils should be playing happily on the sports ground, learning knowledge and being pampered by parents. However, those normal things are luxuries to Xiao Xin who loves reciting and singing, playing and studying. On the threshold of her beautiful life, she was diagnosed Brainstem Glioma this March. Having had various body examinations, it was found that she was not able to have surgery but only long-term treatment of radiotherapy and chemotherapy. Xiao Xin has to bear the pain of treatment in body while her mother has to suffer the torture in heart. After they applied to stay in “Ark Caring Home”, many Shanghainese mothers with love come to visit them, comfort them and take part in “Sick Children Classes” and “Parents’ Classroom” together with them frequently. Life is not easy but hope is the way. “Ark Caring Home” is the Haven to accommodate the suffering families. Hand in hand, let’s walk together!



玫瑰基金“方舟之家”年度预算表(元)

Yearly Budget of "Ark Caring Home" of Rose Fund (RMB.yuan)


“方舟之家”由爱德基金会玫瑰基金发起,以公募方式向社会各界筹集款项,专款专用。项目拥有华东区团队与西南区团队,专职员工十人,各界城市志愿人士一千多人,包括设计师、医生、教师、咨询师、白领、全职妈妈等等。愿优化整合各类资源协同共进,积极为癌症儿童、病友家庭提供住宿与关怀等优质的公益慈善服务。


“Ark Caring Home” is initiated by the Rose Fund of the Amity Foundation, which raises funds publicly from all walks of life. The fund raised is exclusive to designated purpose. There are 10 full time workers in Ark's East and Southwest China team and over 1,000 volunteers from all walks of life including designers, doctors, teachers, consultants, white-collar workers and housewives. We wish to optimize and integrate different resources to provide high-grade charity accommodation and caring services for cancer children and their families.


慈善中国项目备案号:5332000050917103XBA19053

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